Friendship is a comforting smile, a familiar voice that warms the heart, and the freedom to be the person God intended. ~Unknown~ |
I believe we were created to have fellowship, both with God, and with one another. My relationship with God is just that...a relationship. I know He loves me and that He cares for my every need, even those that are seemingly inconsequential to anyone else but me; because if it matters to me, it matters to Him. He has proven Himself faithful repeatedly in that regard, and I am continually blessed by His love, grace and mercy. In the same light, He knows my heart and even though He knows what I am going to say even before I speak, I talk with Him daily. Likewise, we also need relationships with one another. It is how we were designed. The Bible tells us in Genesis 2 that God saw that it wasn't good for man to be alone. So it cannot possibly be healthy to spend day after day with no contact or fellowship with anyone. If we really get down to the truth of the matter, we find that many of us who have rare and incurable diseases are often left feeling isolated and abandoned. People are dying alone and forgotten, and that is heartbreaking to me.
Every now and then, I see people organizing fund raisers for people who have been diagnosed with cancer and other serious, more well-known illnesses than Myasthenia Gravis or Lupus, gathering communities together to help with medical expenses, and I am happy for those who receive such blessings. But time after time I read about the plight of people with my diseases who are left in financial ruin with no one to rush to their aid...no bake sales, garage sales, or any other fund raisers on their behalf, in spite of the fact that their medical expenses are astronomical...even catastrophic. And beyond the financial scope of their situations, they feel abandoned by their friends, and even worse, by family. Is it because there is little awareness of our conditions? Is it because the literature that is out there is outdated and gives a false idea of the seriousness of our diseases? Or perhaps it is because we are all bone-weary of having to deal with it, so we don't. To tell you the truth, I am, quite frankly, baffled. To the depths of my soul, I ache over it.
"A kind gesture can reach a wound that only compassion can heal."
~ Steve Maraboli~
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